Researchers at the Medical University of South Carolina have developed a structured virtual palliative care programme, SUPPORT-D, designed to provide early guidance and support to people living with dementia and their caregivers, with findings from a phase 1 feasibility trial published in Palliative and Supportive Care.

The six-week programme includes a specially designed educational booklet and two meetings with a nurse interventionist. Participants complete structured modules independently before personalising the programme to their specific needs in consultation with the nurse. SUPPORT-D addresses four core areas: understanding the disease, patient self-care, caregiver wellbeing, and future planning.

The trial reported a 76% completion rate, with most participants describing the intervention as helpful. Many brought the programme booklet to medical appointments to guide discussions with their clinicians. Participants particularly valued the support provided in understanding the disease trajectory and planning ahead, though feedback indicated a desire for additional stress management resources, an element the team intends to incorporate into future iterations.

The programme addresses recognised gaps in dementia care. Neurologist shortages can delay diagnosis, primary care consultations are frequently too brief for comprehensive counselling, and families often leave appointments without clear direction. SUPPORT-D is designed to fill this void by introducing palliative care, which focuses on symptom management, emotional support, and quality of life rather than end-of-life care alone, from the point of diagnosis.

The research team plans to apply for National Institute on Aging funding to expand the programme based on participant feedback. Larger clinical trials are anticipated as the next step.

Published in: Palliative and Supportive Care