This year, World Hemophilia Day 2022 focused on progress. On top of raising awareness of hemophilia, WFH aims to integrate bleeding disorders into national policy. Thirty-three years ago, on April 17, 1989, World Hemophilia Day * became a recognized day to…
Read More World Hemophilia Day 2022 – Raising Awareness for Bleeding Disorders
‘Real World’ evidence or data studies are increasingly popular market research methodologies used to examine real patient data. 'Real World' methodologies complement the work of clinical trials by providing a larger evidence base and context. Clinical trials are often biased towards…
Today is World Haemophilia Day! Since 1989, World Haemophilia Day is the day the whole bleeding disorders community comes together to celebrate the continuous advances in treatment while raising awareness and bringing understanding and attention to the issues related to…
Name: ‘LM’, 48 years old. Son: ‘I’, 12 years old. City and country: London, UK. What type of haemophilia does I. suffer from? Haemophilia A – he also has an inhibitor. What is the severity of his condition: severe, moderate or mild?…
Read More Living with haemophilia: ‘LM’ and her son ‘I’ from London, UK
Name: DB Age: 45. City and country: Hitchin, UK. What type of haemophilia do you suffer from? Type B. What is the severity of your condition: severe, moderate or mild? Severe. When were you diagnosed? As a baby, but my first awareness of having haemophilia…
